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Pelajar Final Year Medik Meninggal Akibat Lupus.Rahsiakan Dari Keluarga..
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Edited by GhostWalking at 23-12-2015 08:12 AM
NURUL IZZATY AZYAN
MARANG - Hasrat seorang penuntut jurusan perubatan di Universiti Cairo, Mesir, Nurul Izzaty Izyan Roselan, 23, yang menetap di Kampung Tasek di sini, pulang bercuti untuk bersama keluarganya di Malaysia Januari depan tidak kesampaian.
Malah keluarga Nurul Izzaty Izyan menyambut 'kepulangan' anak kedua daripada empat beradik itu lebih awal malam semalam, apabila jenazahnya tiba di tanah air.
Penuntut tahun akhir itu disahkan meninggal Jumaat lalu, akibat penyakit Systemic Lupus Erythemitosus (SLE).
“Kami menerima panggilan daripada wakil Jabatan Perkhidmatan Awam (JPA) jam 7.45 malam (waktu Malaysia) Jumaat lalu memaklumkan kepada isteri saya, bahawa anak kami telah dimasukkan ke hospital selepas terjatuh dalam bilik air.
“Bagaimanapun, kira-kira jam 11.50 malam, mereka (JPA) sekali lagi menghubungi kami dan memaklumkan Nurul Izzaty Izyan sudah meninggal dunia,” kata bapa Allahyarham, Roselan Abd Rahman, 56.
Dia berkata demikian selepas menerima kunjungan Menteri Besar, Datuk Seri Ahmad Razif Abd Rahman yang menziarahi keluarga itu di rumahnya di Kampung Tasek, di sini, petang kelmarin.
Hadir sama, exco kerajaan negeri yang juga Ketua Umno Bahagian Marang, A Latiff Awang dan Pegawai Penyelaras Dun Alur Limbat, Saiful Bahri Datuk Baharuddin serta Ketua Wanita Umno Bahagian Marang, Toh Puan Zaitun Mat Amin.
Tak sabar tunggu arwah pulang
Mengulas lanjut, Roselan berkata, sebelum berita sedih itu dimaklumkan, mereka sekeluarga tidak sabar menunggu kepulangan puteri kesayangan mereka yang berhasrat untuk pulang ke tanah air sempena cuti semester Januari depan.
“Namun hasratnya untuk pulang ke rumah ini tidak kesampaian. Memang kami sedih, namun kami reda dan saya gembira kerana dia (Nurul Izzaty Azyan) gembira sepanjang berada di sana (Universiti Cairo) bagi mengejar cita-citanya.
“Malah sepanjang belajar di sana, Nurul Izzaty Azyan banyak menghabiskan cuti semester mencari pengalaman sendiri dengan melawat tempat orang (melancong) malah telah menunaikan umrah pada dua tahun lepas,” katanya.
Tak tahu anak sakit
Dalam pada itu, ibu Allahyarham, Rosmani Hussain, 46, memberitahu, dia dan suami tidak mengetahui anak perempuan mereka menghidap penyakit itu kerana ia dirahsiakan daripada pengetahuan mereka.
“Malah setiap kali berhubung melalui WhatsApp dia nampak happy dan ketika bercakap melalui telefon pula dia riang sahaja, tetapi kali terakhir saya bercakap dengannya, dia memaklumkan dia demam tetapi katanya demam biasa,” katanya.
Pegang amanah arwah
Adik Allahyarham, Nur Syahirah, 17, pula berkata, hanya dia seorang yang mengetahui mengenai penyakit dideritai Allahyarham namun tidak memaklumkan kepada kedua ibu bapa mereka kerana tidak mahu mereka bimbang.
“Saya tahu penyakit itu serius tetapi arwah pesan jangan beritahu ibu dan ayah kerana tidak mahu mereka bimbang. Dia cerita kepada ibu bapa lain, kepada saya lain pula. Saya tak beritahu keluarga kerana pegang amanah arwah,” katanya.
Rahsia penyakit Allahyarham hanya terbongkar apabila JPA memaklumkan Nurul Izzaty Izyan dimasukkan ke hospital dan meninggal. Jenazah mangsa akan dibawa pulang ke Malaysia dan dijangka tiba di Lapangan Terbang Sultan Mahmud, Kuala Terengganu, jam 8.40 malam.
Jenazah mangsa akan dikebumikan di Tanah Perkuburan Islam Kampung Tasek, di sini.
http://www.sinarharian.com.my/edisi/terengganu/rahsia-penyakit-daripada-keluarga-1.464915
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SLE masuk kuar ICU nyawa kejap ada kejap takda..
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.. takziah kepada keluarga.. anak yang baik.. |
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SLE is a chronic autoimmune disease that can affect almost any organ system; thus, its presentation and course are highly variable, ranging from indolent to fulminant.
In childhood-onset SLE, there are several clinical symptoms more commonly found than in adults, including malar rash, ulcers/mucocutaneous involvement, renal involvement, proteinuria, urinary cellular casts, seizures, thrombocytopenia, hemolytic anemia, fever, and lymphadenopathy.[1]
In adults, Raynaud pleuritis and sicca are twice as common as in children and adolescents.[1]
The classic presentation of a triad of fever, joint pain, and rash in a woman of childbearing age should prompt investigation into the diagnosis of SLE.[2, 3]
Patients may present with any of the following manifestations[4] :
Constitutional (eg, fatigue, fever, arthralgia, weight changes)
Musculoskeletal (eg, arthralgia, arthropathy, myalgia, frank arthritis, avascular necrosis)
Dermatologic (eg, malar rash, photosensitivity, discoid lupus)
Renal (eg, acute or chronic renal failure, acute nephritic disease)
Neuropsychiatric (eg, seizure, psychosis)
Pulmonary (eg, pleurisy, pleural effusion, pneumonitis, pulmonary hypertension, interstitial lung disease)
Gastrointestinal (eg, nausea, dyspepsia, abdominal pain)
Cardiac (eg, pericarditis, myocarditis)
Hematologic (eg, cytopenias such as leukopenia, lymphopenia, anemia, or thrombocytopenia)
In patients with suggestive clinical findings, a family history of autoimmune disease should raise further suspicion of SLE.
See Clinical Presentation for more detail.
Diagnosis
The diagnosis of SLE is based on a combination of clinical findings and laboratory evidence. Familiarity with the diagnostic criteria helps clinicians to recognize SLE and to subclassify this complex disease based on the pattern of target-organ manifestations.
The presence of 4 of the 11 American College of Rheumatology (ACR) criteria yields a sensitivity of 85% and a specificity of 95% for SLE.[5, 6]
When the Systemic Lupus International Collaborating Clinics (SLICC) group revised and validated the ACR SLE classification criteria in 2012, they classified a person as having SLE in the presence of biopsy-proven lupus nephritis with ANA or anti-dsDNA antibodies or if 4 of the diagnostic criteria, including at least 1 clinical and 1 immunologic criterion, have been satisfied.[7]
ACR mnemonic of SLE diagnostic criteria
The following are the ACR diagnostic criteria in SLE, presented in the "SOAP BRAIN MD" mnemonic:
Serositis
Oral ulcers
Arthritis
Photosensitivity
Blood disorders
Renal involvement
Antinuclear antibodies
Immunologic phenomena (eg, dsDNA; anti-Smith [Sm] antibodies)
Neurologic disorder
Malar rash
Discoid rash
Testing
The following are useful standard laboratory studies when SLE is suspected:
CBC with differential
Serum creatinine
Urinalysis with microscopy
Other laboratory tests that may be used in the diagnosis of SLE are as follows:
ESR or CRP results
Complement levels
Liver function tests
Creatine kinase assay
Spot protein/spot creatinine ratio
Autoantibody tests
Imaging studies
The following imaging studies may be used to evaluate patients with suspected SLE:
Joint radiography
Chest radiography and chest CT scanning
Echocardiography
Brain MRI/ MRA
Cardiac MRI
Procedures
Procedures that may be performed in patients with suspected SLE include the following:
Arthrocentesis
Lumbar puncture
Renal biopsy
See Workup for more detail.
Management
Management of SLE often depends on the individual patient’s disease severity and disease manifestations,[8] although hydroxychloroquine has a central role for long-term treatment in all SLE patients.
Pharmacotherapy
Medications used to treat SLE manifestations include the following:
Biologic DMARDs (disease-modifying antirheumatic drugs): Belimumab, rituximab, IV immune globulin
Nonbiologic DMARDS: Cyclophosphamide, methotrexate, azathioprine, mycophenolate, cyclosporine
Nonsteroidal anti-inflammatory drugs (NSAIDS; eg, ibuprofen, naproxen, diclofenac)
Corticosteroids (eg, methylprednisolone, prednisone)
Antimalarials (eg, hydroxychloroquine) |
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What is lupus?
The main role of the immune system is to fight foreign invaders such as bacteria, moulds and viruses. In autoimmune diseases the immune system produces antibodies that attack the body's own healthy tissue. Lupus is an autoimmune disease, and the antibodies produced by the immune system in lupus cause inflammation, tissue damage and pain.
Who is affected by lupus?
Lupus is most common in women (90%) and the majority develop the condition between 15 and 45 years. When lupus occurs in children it is usually diagnosed during puberty.
There are two main types of lupus
There are two main types of lupus, which differ significantly in the type and severity of symptoms:
Systemic lupus erythematosus (also known as SLE) can affect almost any organ or system of the body. In most people only the skin and joints are affected. However, in other people SLE can also affect the kidneys, lungs, heart, blood vessels and/or brain.
Discoid lupus (also known as chronic cutaneous lupus erythematosus) is generally milder than SLE and usually appears as a red scaly rash on sun exposed areas such as the face, scalp, arms, legs or trunk. Most people with discoid lupus have symptoms only on their skin. However, a small number of people with discoid lupus will develop SLE.
Other milder forms of lupus sometimes occur. In subacute cutaneous lupus the main symptoms are skin rashes, sun sensitivity and joint aches. Drug induced lupus is usually a transient form that develops as a reaction to certain medications and clears up when the medications are ceased.
The cause of lupus is unknown
An interplay of genetic and environmental factors contribute to the formation of the antibodies that lead to lupus.
SLE is characterised by flare ups and remissions. Some of the possible triggers of disease flare ups include hormones, certain medications and chemicals, viral and bacterial infections, exposure to UV light, dietary factors, stress and pregnancy.
Lupus symptoms may be vague, variable and unpredictable
Lupus can cause many symptoms, including joint pain or swelling (seen in 50% of people with lupus), skin rashes that get worse with sun exposure (20% of people with lupus), fever, loss of appetite and weight loss. Fatigue, weakness and lethargy affects 10% of people with lupus and may be severe.
Most people with lupus will never experience all the symptoms and no two individuals seem to experience identical symptoms. A subset of people with lupus are at increased risk of blood clots and recurrent pregnancy loss.
The course of lupus is usually unpredictable
For some people, symptoms will subside after treatment of the initial acute attack. For others, periods of improvement (remission) are punctuated by brief flares of disease.
Early diagnosis is important
The diagnosis of lupus is usually suspected on the basis of clinical symptoms and signs and confirmed by laboratory tests. Blood tests will usually include an Anti Nuclear Antibody (ANA) test, which measures antibodies to self tissues. Whilst this is a good screening test, not all people with SLE have a positive ANA result and many people with a positive ANA do not have SLE. For example, close relatives of SLE patients may have a positive ANA without developing SLE themselves. Additional blood tests are necessary to confirm the diagnosis and to monitor the activity of SLE.
Effective treatments are available for lupus
The aims of treatment for lupus are to reduce inflammation in tissues and to improve quality of life. Treatment must be individualised, taking account of the severity of the disease.
There are five main groups of drugs that are used to treat lupus:
Non steroidal anti inflammatory drugs (NSAIDs) such as Aspirin, ibuprofen, naproxen and Cox-2 inhibitors reduce inflammation and can relieve the fevers, muscle aches, and arthritis that accompany lupus, but they do not alter the course of the disease or the underlying immune process.
Anti malaria drugs (such as hydroxychloroquine and chloroquine) are often used to reduce joint pains, skin rashes and fatigue.
Corticosteroids (such as Prednisolone) are very effective anti inflammatory medications and are the drugs of choice for treating serious complications of lupus, such as those affecting the heart, lungs and nervous system.
Immune suppressing drugs (such as methotrexate) suppress the immune system and are generally used when serious disease is present and steroids alone are not enough to control the disease.
Cytotoxic drugs (such as cyclophosphamide) are potent immunosuppressive agents that are used to treat serious manifestations of SLE, especially kidney inflammation (glomerulonephritis).
Diagnosis, treatment and lifestyle changes are important
The outlook for most people with lupus is good. Early detection, effective treatment and some lifestyle adjustments enable most people with lupus to feel well and live normal lives. It is only a small minority of people who find the condition substantially reduces their quality of life.
Lupus and pregnancy
Women with lupus should talk to their doctor before considering pregnancy. They should be made aware of any potential risk for themselves and the baby. It is preferable for lupus to be in remission, as this reduces the risk of a disease flare occurring during pregnancy. Lupus flares occurring during pregnancy are usually mild and occur in the first three months (trimester). In the first few weeks after birth new mothers may experience lupus flares but this can be controlled with corticosteroids.
It is important to discuss therapy options with your doctor to ensure that any current medication taken will not adversely affect the pregnancy. Women should have no difficulty becoming pregnant as lupus does not usually lower fertility, but a small proportion of women will suffer recurrent miscarriage.
Some tips to help people with lupus to lead normal lives
The following tips may assist people with lupus to lead normal lives:
take rests before allowing yourself to become fatigued, which may mean restructuring your schedule and avoiding stressful situations
commence a program of regular moderate exercise (without becoming fatigued) as this should improve well being and prevent muscle wasting
sun exposure can trigger flare ups so avoid excessive exposure to the sun by wearing a broad brimmed hat, long sleeves and long trousers, and always use maximum strength sunblock that protects against UVA and UVB rays
avoid contact with people who have known infections
find out as much about lupus as you can to help gain control and remove fear
visit your doctor regularly (particularly if you feel that your symptoms are worsening) and keep a list of your symptoms and any questions you might have for your doctor
always take your medications as you have been instructed and keep a record of your medications
do not smoke (for your health and well being)
drink alcohol only in moderation (up to two standard drinks daily)
make contact with a local support group
There are currently no cures for lupus, but there are effective medications that will bring the disease under control, and often permanently. As you grow older, it is likely that the disease will improve.
There are a number of organisations which provide support and information to people with lupus and their families, as well as promoting understanding and awareness of the condition in the community. They can also organise funding for further research into lupus and its management. A list of these organisations is available on the ASCIA website: Patient support organisations |
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tak pernah ku dgr penyakit nih..
takziah buat keluarga
alfatihah.. |
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Systemic lupus erythematosus (SLE) is an autoimmune disease in which the body's immune system mistakenly attacks healthy tissue. It can affect the skin, joints, kidneys, brain, and other organs.
try google, bahaya btol penyakit nie.... |
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tau tentang penyakit ni pun dari drama yg si aron aziz berlakon.
takziah pada keluarga
sedih mak ayah dia....  |
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selena Gomez pun kene penyakit lupus kan |
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mesti adik dia dalam dilema
kakak suruh rahsiakan dari mak ayah
takziah...
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Ada sahabat baru diagnosed sle tahun ni...
Alhamdulillah so far nampak ok..
Dos ubat pun makin turun.. |
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khen dek gost pun sedih baca ober sensitip la skang nih
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kesiannya... |
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ummah lokal bimbo baru menggeletar bila tahu kewujudan sle..dulu makcik kejiranan saya obvious sngt rashes dimuka beliyau tapi gigih selet air yassin bomoh siam pelbagai..alhamdullilah skrang beliyau dah percaya ubatan2 hospital dan makan pelbagai steroid untuk kurangkan inflamasi...
kalau kena lupus apa tindakan ummah lokak sis rasa? selet air malam jumaat???
Takziah kepada adik dan keluarga beliyau. |
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patutnya arwah kena bgitau sakit dia..dia rahsia pasal takut takle blaja jauh dpt bejalan2 tmpt org..ujung2 makpak terpaksa terima tubuh kakumu dikala penantian yg tidak bersisa..
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PEnyakit yg serius tp aku xtau lak fatal.kesian sgt.aku xleh bayang kalo aku sbg bapa menerima berita yg sma.rasa mcm biarla penyakit tu transfer kat aku n anak aku selamat.huaaaa |
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Sle x blh kena panas nanti lg cepat dia melarat.. Member aku abes satu badan.. Pastu x leh penat dan stres.. Tp skrg tgk Alhamdulillah.. |
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Post time 23-12-2015 04:11 PM
变色卡
Author
