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tak ingat pulak..tp apa yg specialist tu cakap mmg rendah ..and pelik sbb malaysia negara yg ada matahari kan .. |
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eh itu mungkin bukan fibromyalgia tu zafira.
berapa umur.
tapi dah di bawa ke rheumo tu tentulah dia dapat diagnose properly
kesian jugak dgn pain syndomes ni
cer awak tanya rheumo awak tu, apa kah yg dia rasa diagnosis nye
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oh, tu mungkin guna units yg satu lagi.
if low, kena mkn viot dia lah
hmm takde kidney probs ke apa
vit d ni is a steroid vitamins, so byk system yg boleh rosakkan metabolism dia
very important vit
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she's 23 doc... memanjang sakit... my doter ni since darjah 6 dah refer rheumo sebab symptom2 SLE dia & alhamdulillah negative of SLE tapi banyak pulak sakit2 lain, carpal tunnel, sakit sendi & macam2 lagi... sampai kurus kering... sekarang ni dok mengadu sakit perut.. saya mentioned kat dia pasal fibromyalgia kat my doter and dia kata rheumo pernah mentioned pada dia... nanti saya tanya rheumo tu.. nasib baik kami jumpa rheumo yang sama.. cuma tarikh berbeza2.. tu yg kadang2 tak dapat teman dia sebab hari kerja.. thanks doc...
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i've check 54 nmol/L
mmg tgh ambik vit d yg drops punya . now dr dah refer pada specialist . will see her on 6/5 . so far mmg takde kidney prob.
mmg ambik vit d ni ada side effect ke?
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hmm in that case kena heumo yg devise the diagnosis
dia akan ambil full history, buat full physical examination
thn full blood tests termasuklah yg more exotic
dan maybe kena ada imagings etc
i am happy to hear that dia tak di diagnosed with SLE
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vit d is one of a few vits yg tak leh amik terlampau byk
sbb ada Hypervitaminosis D.
so, after 6 mth, kami kat sini cek balik vitd levels in blood
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Dr ipes ..kat mana lagi yg bole buat rawatan fibromyalgia ni ..di malaysia ..sbb kebanyakan doc tak aware dgn penyakit ni ...
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limau_lemon replied at 14-4-2017 03:55 PM
hmmm...iols dah baca dr .. i've been treated for trigger finger dan dari situ specialist suspect som ...
What is trigger finger? |
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limau, penyakit ni dikira kes utk rheumatologist
so, u boleh lah mintak GP u refer to any rheumatologist
tak yah ke private, public pon ok
malangnya, nak diagnose is quite tricky sbb kena exclude diagnoses lain
satu lagi, management nye pon belum lagi fully standardized
good luck limau
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Nora, TF tu bila tendon kita inflamed, so dia tersangkutlah dalam sarung nye bila kita gerak finger kita
jadi finger nmpk cam tgh pulling trigger je
pastu bila kita paksa sikit, dia pon terlepas la, tapi dgn sedikit bunyi
so the word TF tu sesuai sgt
manual workers dpt la kes gini
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ipes2 replied at 11-11-2017 02:51 PM
Nora, TF tu bila tendon kita inflamed, so dia tersangkutlah dalam sarung nye bila kita gerak finge ...
Oo tq for the explanation. |
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apa thank you tahnk you, bil nye bila nak langsai.
eh, awak sangka ini service free ke 
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ipes2 replied at 15-11-2017 03:39 AM
apa thank you tahnk you, bil nye bila nak langsai.
eh, awak sangka ini service free ke :shakehead ...
Errr err errr. Doc, pm no hp ye, eh hahahah mksd sy no akaun. Rm5 kan? |
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rm200 la bill nyer!
5 ringgit lak!
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ipes2 replied at 16-11-2017 06:40 PM
rm200 la bill nyer!
5 ringgit lak!
Mereput la iols nk bayar. Huh |
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haaa dah bukak ruangan borak kosong tuh
also ada 3 misconceptions explained away
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Edited by ejrazak at 16-11-2017 11:49 PM
I'm diagnosed with spondyloarthropathy and fibromyalgia in Sept. My ESR was 63 at that time. So the medication prescribed was 20mg prednisolone daily. After 2 weeks taking prednisolone my vision worsen ( rabun jauh from 575 to 775) . Also other body reaction i.e. whole body rashes, sensitive throat, frequent vomitting, fever and worsen body pain. ESR level remain high at 60. So the rheumologist concluded tt my body only reacting partially to prednisolone hence opted for biologic theraphy. My first biologic theraphy (infliximab 300ml) was 2 weeks ago. During the theraphy (about 150ml completed) I started having severe abdominal cramp, vomitting, difficulty to breath and unstable blood pressure. So the rheumologist decided to stop the theraphy. Within 3-4 days after theraphy I experienced abdominal cramp n difficulty to breath still and also vomitting, fever. I'm due for another biologic theraphy next week. According to the rheumologist, he hardly have any patient reacting to infliximab as I do. Apparently biologic theraphy is now the state-of-the-art treatment for auto immune related disease .
Appreciate if you share your experience about biologic theraphy. And also what other medication option available in Malaysia. It's very frustrating and depressing as I don't feel significant improvement after undergone these medication / theraphy. It seems like most of the time my body is struggling to recover from the medication reaction itself instead of healing. |
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yes infliximab ialah anti TNF-alpha; actually diguna agak meluas dalam Crohns Disease, psoriasis yg teruk, psoriasis arthropathy (sendi rosak kerana psoriasis), rheumatoid arthritis, ankylosing spondylitis (ank spond). U bukan kena ank spond kan? just nak confim je. spondyloarthritis tu besar sikit scope nye dan bukan satu penyakit yg specific.
bagus lah jika infliximab is available tetapi i am sorry to hear that u reacted badly to it. i am quiteful mindful to tell you that i am an endocrinology doctor, but we are familiar with inflix, adalimumab, etanercept and the very many other small molecules or monoclonal antibodies. byk sgt all these -mumabs, imabs, tinibs etc these days n they are super-complicated n expensive. i agak surprised ia diguna di malaysia.
paling utama ialah good patient selection.
kedua ialah, to know that ianya hanyalah a tool, so kena pengguna tool tu decide many aspect of the medication.
if u reacted poorly, then i yakin your specialist akan bincang dgn u the next step nye. well, he should.
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normal ke doctor org mcm i ni senang give up ..i mean ...bosan ulang alik hosp ..bosan kena makan supplement mcm2..setiap kali jumpa doc ada je supplement dia suruh ....and she kept say the same thing, handphone punca i susah nk tidur sbb ada radiation ..betul ke? then selalu cakap perut ada cacing?
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Post time 19-4-2017 06:08 PM
Author
