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Author: seribulan

NARRATIVE MEDICINE...norma baru?

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Post time 4-7-2020 08:25 PM From the mobile phone | Show all posts
Nanti nak study
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 Author| Post time 4-7-2020 09:26 PM | Show all posts

share any interesting info
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 Author| Post time 4-7-2020 09:48 PM | Show all posts
As Charon et al. comment, these narrative features may be considered individually, but in practice they work together to produce the unique story that is told—the whole being greater than the sum of the parts (2016, 466). Our comprehension of these narrative features is summarized as follows:

time—the representation of past, present and future;

space—the positioning and movement of characters and events within physical and geographical realms;

voice—the personalities and points of view that are communicated as narrators speak to audiences and characters speak to each other;

metaphor—the language of resemblance used to describe a feeling, situation or event; and

genre—the type of text determined by common codes and conventions of narrative construction
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 Author| Post time 4-7-2020 09:49 PM | Show all posts
Time
Time in illness

In choosing how to represent their lived experiences of melanoma, the storytellers had to establish an event as a beginning point. Half the stories we read began at the point in time when some kind of change in health was identified or a symptom particular to skin disease was noticed. In these accounts we enter the storyteller’s illness experience when the possibility of disease becomes apparent.

We move through a timeline in which a diagnosis is made, treatment is given and an outcome is arrived at. Some stories concluded with the storyteller still in treatment, some with treatment finished and follow-up care becoming routine, and others, such as the following story, with recurrence or metastases.
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 Author| Post time 4-7-2020 09:51 PM | Show all posts
“At 22yrs I had a small pink nodule on my neck, just behind my ear, my hairdresser commented on it, said it needed to be checked as it went red when she washed my hair. I promised I would have it checked but I didn’t. Over a period of several months it started to turn dark and grow down my neck. Although it wasn’t very big, less than 3mm, people started asking what was on my neck, had I put permanent marker by accident? I finally went off to the doctor and he referred me to a skin specialist and it was removed as a precaution. 10 days later I was told it was a Melanoma and needed further surgery….full check-ups were required for the next 5 years before I finally got the all clear. 28 years later almost to the day, it presented in my gallbladder… I am now stage 4 cancer, living a life of uncertainty.”

This story spans from early adulthood into middle age though the framing of time is imbalanced. The storyteller is imprecise about time frames in the period of events that lead from symptom to diagnosis, recounting grappling with the presence of the symptom for “several months.”

This description notably contrasts with the specificity of periods of time recounted in diagnosis and treatment, follow-up care and metastases—ten days, five years, and twenty-eight years. This contrast prompted reflection about the personal circumstances of the storyteller at the time of symptom identification—what issues untold in the story might have impacted the storyteller’s desire or capacity to take action on so conspicuous a growth for such a long time? The framing of time in the text is also unbalanced by the uncertainty the storyteller speaks of. The short period of the present uncertainty casts a shadow well back into the past—though given the ‘all clear’ almost thirty years prior, it turns out that certainty was never a reality.
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Post time 4-7-2020 10:06 PM From the mobile phone | Show all posts
seribulan replied at 4-7-2020 09:26 PM
share any interesting info

Ok baiklah
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 Author| Post time 4-7-2020 10:10 PM | Show all posts

sambil saya tambah info...
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 Author| Post time 4-7-2020 10:13 PM | Show all posts
The other half of the stories we read began their narrative timelines prior to symptom identification, before recurrence or metastases were identified. In the story extract below, the storyteller’s perception of the experience of illness begins with a time in ordinary life before the disease was exposed. This expositional view frames the experience of melanoma as beginning in childhood:

“I grew up on a dairy farm... My summer vacations entailed picking rock and stacking bales in the barn. I admit I was young and dumb when it came to skin protection. I rarely used sunscreen. I would go out in the field in a tank top and shorts. I had numerous sunburns. I remember having trouble sleeping some nights due to painful sunburns. There was never a need for a tanning bed because I was always tanned. I was a sophomore in high school when an ugly, irregular, dark mole appeared on my inner thigh. It was bigger than a pencil eraser and appeared to be almost black with a little blue in it. I remember it almost had a numb sensation when it was touched. It was right before my 18th birthday when I noticed the center of the mole had turned white. That wasn't the only change. I was tired all the time! I had also been experiencing a tightness in my throat. It prompted us to visit the doctor. He didn't find anything with my throat, so I was diagnosed with having panic attacks. The doctor looked at the mole and said he didn't think it was cancerous, but he would remove it just to be sure. It was a snowy day in February, a few days before Valentine's Day, when I got the news that I had melanoma…Forty-some stitches later, I was left with a seven inch scar on my leg…I now see a dermatologist annually. I'm 39 years old. I've been married for 16 years and we have three girls. I'm proud to say my daughters have never had a sunburn.”

This storyteller perceives that she may have lived with melanoma from early on in her life. Though no explicit link is made between the early years of sun exposure and the diagnosis of melanoma, and the storyteller makes no overt comment on how the diagnosis felt in light of the serious sunburns received in youth, she ends the story describing her feeling of pride in preventing her daughters from sunburn. She contrasts the lack of protection from sunburn endured as a child and teen with the present capacity as an adult to protect her own children from that danger. Possible feelings about the early sun exposure and the link to melanoma—regret, anger, guilt—are secreted into the action taken to ensure that the next generation will not have sun exposure to blame for melanoma. Her children will not have to deal with melanoma caused by sunburn in their lifetimes.

Implicit in this story, as in the previous story, is the vague passing of time from symptom appearance to medical advice. The storyteller narrates that she was at sophomore level in high school—which marks an age of between fifteen and sixteen years of age—when the mole appeared and eighteen years old when changes in the mole and other symptoms of ill health prompted the decision to consult a doctor. The appearance of the mole was not enough of a physical change to warrant seeking medical advice. It seems that some two years may have passed from the time the physical change was noted through to the time diagnosis was made and an excision was performed. The storyteller’s self-confessed naivety about skin cancer may have contributed to extending the time in illness.

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Post time 5-7-2020 09:36 AM From the mobile phone | Show all posts
zranger replied at 2-7-2020 06:10 PM
Maybe kat private boleh kot..tp hospital/kkinik kerajaan memang tak la, unless psychiatry clinic/w ...

dua dua hosp ada. But depends pada doktor tu. Of coz gov u kena tgu lama, private pulak kos la tinggi. Bertumbuk? rarely di gov. Jarang.. yg ada tu klinik kesihatan... mostly klinik kesihatan adalah, mybe. Hosp both private and gov  via appointment
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 Author| Post time 5-7-2020 10:02 AM From the mobile phone | Show all posts
ipes2 replied at 2-7-2020 12:36 AM
semua doctors rasanya ingin sahaja spend alot of times dengan pesakit mereka, tetapi actually time s ...

Medical time
We found that many of the Internet pathographies we read were explicit about dates and time frames related to medical trajectories. The following extract offers an example:

“It started with a black spot on my left shoulder that starting bleeding. On December 31 (new years eve) 2008 the dermatologist called to tell me it was melanoma. Since that time, 2008 to 2013, I have had four surgeries and was told in June 2014 that I was stage 4.”

While this chronologically organized list of events—this happened then this happened—lacks explicit reference to the physical, psychosocial or practical impacts of the experience, there are implicit clues to the significance of the experience for the storyteller, based on the way time is situated in the story. The storyteller notes, for example, that December 31—the day of the first diagnosis of melanoma—is New Year’s Eve. Though no explanation is given as to why this detail was included or what meaning this date held for the storyteller, we know that the eve of a new year signals renewal and regeneration—a time when it is customary to make positive resolutions about life going forward. We reflected on the impact on our own lives of receiving a diagnosis of cancer at such a time and by empathic inference we could project how diagnosis on this date may have affected the storyteller.
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 Author| Post time 5-7-2020 10:03 AM From the mobile phone | Show all posts
Waiting time—the time waiting for test results to be delivered, for the outcomes of surgical procedures to be relayed to the storytellers, for wounds to heal and for melanoma to recur—featured in many of the stories we read. In the following extract, the storyteller frames the impact of a waiting period as a set of uncertainties and questions about his future:

“The next 21 days were some of the longest; waiting for tests to come back, not knowing exactly how bad the cancer really was, if it had spread, if it hadn’t spread, how long I have to live, what’s next?”
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Post time 14-7-2020 02:15 AM | Show all posts
seribulan replied at 5-7-2020 10:02 AM
Medical time
We found that many of the Internet pathographies we read were explicit about dates a ...

yes and i do see in today's young doctors inputs some narratives like above; there are usefulness but there are also time factors and redundancies, eg, most docs, in order to move on to the next patient, will want to know quickly whats what. they will be too busy one day to keep practice narrations like that
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Post time 14-7-2020 02:24 AM | Show all posts
seribulan replied at 4-7-2020 07:43 PM
Isn't it  it is better for the pre treatment stage...but I did read a research done on the while ...

yeah, read all those; pretty good tho not new in concept
most docs are scientifically-leaning tho, so, we will need to see how it all goes
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Post time 14-7-2020 02:25 AM | Show all posts
adila39 replied at 4-7-2020 07:37 PM
what about narrative in point of view of patients tu? anyway ur doing just good here and over ther ...

good points; most patients tho like to talkto their doctors even in emergency
especially the ones they see as capable and can help them
ie ones they have confidence in
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Post time 14-7-2020 02:26 AM | Show all posts
seribulan replied at 4-7-2020 02:02 PM
Toilet

Nope.. you are right track

ha ha no, am not replying from the toilet.. baru bangun at 7.30 petang ni since morning tidur
so, nak solat apa semua and now lapar. maghrib is still at 1000pm so still have plenty of time
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Post time 14-7-2020 02:27 AM | Show all posts
seribulan replied at 4-7-2020 02:03 PM
Yup, on theory anything possible...not so in reality

yeah; on paper is not the same in reality
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 Author| Post time 20-7-2020 11:50 AM | Show all posts
ipes2 replied at 14-7-2020 01:15 AM
yes and i do see in today's young doctors inputs some narratives like above; there are usefulness  ...

Might be just adjust a bit and add a bit of narrative tips when discussing with patients in the beginning
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 Author| Post time 20-7-2020 11:55 AM | Show all posts
ipes2 replied at 14-7-2020 01:24 AM
yeah, read all those; pretty good tho not new in concept
most docs are scientifically-leaning tho ...

Then follow up while and post discussion
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Post time 23-7-2020 11:11 PM | Show all posts
seribulan replied at 20-7-2020 11:55 AM
Then follow up while and post discussion

huhu tu yang tidak ada masa tu
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 Author| Post time 24-7-2020 08:13 AM | Show all posts
ipes2 replied at 23-7-2020 10:11 PM
huhu tu yang tidak ada masa tu

Please use them compare to your usual narrative
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